Parents have children. They notice things, little things that just seem to separate their child from other children. They express these concerns to their healthcare providers and are often dismissed for months or sometimes years.
And then, on what was supposed to be an ordinary day, there is a diagnosis, unfamiliar and often difficult to pronounce, accompanied by a definition that accurately describes the symptoms, now so familiar.
Advocacy is born out of necessity. It presents both challenge and opportunity. It includes speaking up, drawing attention to an issue, and directing decision makers toward a solution.
This talk will focus on the stakeholders and the tools they utilize for success: Leadership development, Coalition building, Networking, Political lobbying and leveraging support – the IN’s of advocacy:
INFORMED — INVOLVED — IN TOUCH — IN FRONT — INFLUENTIAL
Founding President and CEO, Parent Project Muscular Dystrophy (PPMD)No slides available
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Please join on May 13-14, 2021