An MIT engineer, Jamie entered the field of translational research and medicine when his brother Stephen was diagnosed with ALS at age 29. His innovations have been described as transformational in drug discovery, personalized medicine, and patient care.
As co-founder and chairman of PatientsLikeMe, Jamie provides the scientific vision and architecture for its patient-centered medical platform, allowing patients to share in-depth information on treatments, symptoms and outcomes. PatientsLikeMe has been named one of “15 companies that will change the world” by CNNMoney and one of the “50 Most Innovative Companies in the World” by Fast Company.
In 1999, he founded the ALS Therapy Development Institute, the world’s first non-profit biotechnology company which runs a large-scale discovery and informatics program focused on finding effective treatments for ALS.
Jamie’s work has been profiled by the New Yorker, New York Times, 60 Minutes, NPR, Science, and Nature. He and Stephen were the subjects of Pulitzer Prize winner Jonathan Wiener’s biography, His Brothers Keeper and the Sundance award-winning documentary, “So Much So Fast.”