Lynne has been a nurse for over 30 years and a Nurse Practitioner working with children and adults who have all types of rare diseases for 25 years. Lynne is a Senior Nurse Practitioner, the Undiagnosed Diseases Network NIH-UDP Site Coordinator, and the Principal Investigator for the Congenital Disorders of Glycosylation protocol. She is also an Associate-Investigator and Study Coordinator for the Epi-743 Investigational Drug trial for mitochondrial disease at National Human Genome Research Institute. Her areas of research include congenital disorders of glycosylation, mitochondrial disease/dysfunction, treatment of rare diseases, nutrition and supplement support for metabolic and mitochondrial diseases, and transitional care, all areas she has also published in. She speaks frequently to professional and family support groups around the world.